Patient perspectives on navigating the field of traumatic brain injury rehabilitation: a qualitative thematic analysis.
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › fagfællebedømt
Standard
Patient perspectives on navigating the field of traumatic brain injury rehabilitation : a qualitative thematic analysis. / Graff, Heidi J.; Christensen, Ulla; Poulsen, Ingrid; Egerod, Ingrid.
I: Disability and Rehabilitation, Bind 40, Nr. 8, 2018, s. 926-934.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › fagfællebedømt
Harvard
APA
Vancouver
Author
Bibtex
}
RIS
TY - JOUR
T1 - Patient perspectives on navigating the field of traumatic brain injury rehabilitation
T2 - a qualitative thematic analysis.
AU - Graff, Heidi J.
AU - Christensen, Ulla
AU - Poulsen, Ingrid
AU - Egerod, Ingrid
PY - 2018
Y1 - 2018
N2 - Purpose: This study aimed to provide an understanding of the lived experience of rehabilitation in adults with traumatic brain injury (TBI) from hospital discharge up to four years post-injury.Materials and methods: We used a qualitative explorative design with semi-structured in-depth interviews. Twenty participants with TBI were included from a level I Trauma Center in Denmark at 1–4 years post-injury. Qualitative thematic analysis was applied for data analysis.Results: Three main themes emerged during analysis: A new life, Family involvement, and Rehabilitation impediments. These themes and their sub-themes described the patient perspective of TBI and rehabilitation post hospitalization. Participants reassessed their values and found a new life after TBI. Family caregivers negotiated rehabilitation services and helped the participant to overcome barriers to rehabilitation. Although participants were entitled to TBI rehabilitation, they had to fight for the services they were entitled to.Conclusion: Individuals with TBI found ways of coping after injury and created a meaningful life. Barriers to TBI rehabilitation were overcome with help from family caregivers rather than health care professionals. Future studies need to find ways to ease the burden on family caregivers and pave the way for more accessible rehabilitation in this vulnerable group of patients.Implications for rehabilitationTBI rehabilitation might benefit from: • Increased transparency in rehabilitation options • More systematic follow-up programs • Age-appropriate rehabilitation facilities • Inclusion of patient and family in the planning of long-term rehabilitation
AB - Purpose: This study aimed to provide an understanding of the lived experience of rehabilitation in adults with traumatic brain injury (TBI) from hospital discharge up to four years post-injury.Materials and methods: We used a qualitative explorative design with semi-structured in-depth interviews. Twenty participants with TBI were included from a level I Trauma Center in Denmark at 1–4 years post-injury. Qualitative thematic analysis was applied for data analysis.Results: Three main themes emerged during analysis: A new life, Family involvement, and Rehabilitation impediments. These themes and their sub-themes described the patient perspective of TBI and rehabilitation post hospitalization. Participants reassessed their values and found a new life after TBI. Family caregivers negotiated rehabilitation services and helped the participant to overcome barriers to rehabilitation. Although participants were entitled to TBI rehabilitation, they had to fight for the services they were entitled to.Conclusion: Individuals with TBI found ways of coping after injury and created a meaningful life. Barriers to TBI rehabilitation were overcome with help from family caregivers rather than health care professionals. Future studies need to find ways to ease the burden on family caregivers and pave the way for more accessible rehabilitation in this vulnerable group of patients.Implications for rehabilitationTBI rehabilitation might benefit from: • Increased transparency in rehabilitation options • More systematic follow-up programs • Age-appropriate rehabilitation facilities • Inclusion of patient and family in the planning of long-term rehabilitation
U2 - 10.1080/09638288.2017.1280542
DO - 10.1080/09638288.2017.1280542
M3 - Journal article
C2 - 28129694
VL - 40
SP - 926
EP - 934
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
IS - 8
ER -
ID: 172803077