Living Ambivalently with Chronic Illness

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Mobile health smartphone applications (mHealth apps) enable patients to monitor how chronic illness interconnects with their everyday life. I explore, through focus group discussions, how such monitoring makes sense to pediatric and young patients and parents in Denmark. These groups explicate how they live both with and without chronic illness by distinguishing between when to focus on which aspects of it. I argue that this relationship with chronic illness produces parent’s, children’s, and young people’s ambivalent attitudes toward mHealth apps that promote illness monitoring “anywhere” and at “any time.”
OriginalsprogEngelsk
TidsskriftMedical Anthropology: Cross Cultural Studies in Health and Illness
Vol/bind42
Udgave nummer2
Sider (fra-til)191-205
Antal sider15
ISSN0145-9740
DOI
StatusUdgivet - 2023

Bibliografisk note

Funding Information:
I am grateful for the lively discussions with the children, parents, and the hospital youth panel that spend their time to share their perspectives and put their trust into this study. Furthermore, I would like to thank the Danish Haemophilia Society for your support and engagement in my research. Thank you Associate Professor Henriette Langstrup, Professor Morten Skovdal, Professor Anne Frølich at Institute for Public Health, University of Copenhagen, and Associate Professor Jakob Eg Larsen at Department of Applied Mathematics and Computer Science, Technical University of Denmark for your indispensable guidance. Thank you to the Center of Telemedicine, Capital Region of Denmark and Copenhagen Center for Health Technology (CACHET) for funding the project.

Funding Information:
This work is part of a PhD study funded by Cachet and Telemedicinsk Videncenter, Capital Region of Denmark. I am grateful for the lively discussions with the children, parents, and the hospital youth panel that spend their time to share their perspectives and put their trust into this study. Furthermore, I would like to thank the Danish Haemophilia Society for your support and engagement in my research. Thank you Associate Professor Henriette Langstrup, Professor Morten Skovdal, Professor Anne Frølich at Institute for Public Health, University of Copenhagen, and Associate Professor Jakob Eg Larsen at Department of Applied Mathematics and Computer Science, Technical University of Denmark for your indispensable guidance. Thank you to the Center of Telemedicine, Capital Region of Denmark and Copenhagen Center for Health Technology (CACHET) for funding the project.

Publisher Copyright:
© 2023 The Author(s). Published with license by Taylor & Francis Group, LLC.

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