“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark

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Standard

“That is why I have trust” : unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark. / Sheikh, Zainab Afshan; Hoeyer, Klaus .

I: Medicine, Health Care and Philosophy, Bind 21, Nr. 2, 2018, s. 169–179.

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningfagfællebedømt

Harvard

Sheikh, ZA & Hoeyer, K 2018, '“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark', Medicine, Health Care and Philosophy, bind 21, nr. 2, s. 169–179. https://doi.org/10.1007/s11019-017-9795-9

APA

Sheikh, Z. A., & Hoeyer, K. (2018). “That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark. Medicine, Health Care and Philosophy, 21(2), 169–179. https://doi.org/10.1007/s11019-017-9795-9

Vancouver

Sheikh ZA, Hoeyer K. “That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark. Medicine, Health Care and Philosophy. 2018;21(2):169–179. https://doi.org/10.1007/s11019-017-9795-9

Author

Sheikh, Zainab Afshan ; Hoeyer, Klaus . / “That is why I have trust” : unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark. I: Medicine, Health Care and Philosophy. 2018 ; Bind 21, Nr. 2. s. 169–179.

Bibtex

@article{8cb886c1d79d4e428a12fc49dbb6a0b0,
title = "“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark",
abstract = "Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in both Pakistan and Denmark with people who provide blood samples and health data for the same laboratory, we find that when participants discuss trust they are trying to shape their relationship to researchers while simultaneously communicating important hopes, fears and expectations. The types of trust people talk about are never unconditional, but involve awareness of uncertainties and risks. There are different things at stake for people in different contexts, and therefore it is not the same to trust researchers in Pakistan as it is in Denmark, even when participants donate to the same laboratory. We conclude that casual references to ‘trust’ in policy documents risk glossing over important local differences and contribute to a de-politicization of basic inequalities in access to healthcare.",
author = "Sheikh, {Zainab Afshan} and Klaus Hoeyer",
year = "2018",
doi = "10.1007/s11019-017-9795-9",
language = "English",
volume = "21",
pages = "169–179",
journal = "Medicine, Healthcare and Philosophy",
issn = "1386-7423",
publisher = "Springer",
number = "2",

}

RIS

TY - JOUR

T1 - “That is why I have trust”

T2 - unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark

AU - Sheikh, Zainab Afshan

AU - Hoeyer, Klaus

PY - 2018

Y1 - 2018

N2 - Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in both Pakistan and Denmark with people who provide blood samples and health data for the same laboratory, we find that when participants discuss trust they are trying to shape their relationship to researchers while simultaneously communicating important hopes, fears and expectations. The types of trust people talk about are never unconditional, but involve awareness of uncertainties and risks. There are different things at stake for people in different contexts, and therefore it is not the same to trust researchers in Pakistan as it is in Denmark, even when participants donate to the same laboratory. We conclude that casual references to ‘trust’ in policy documents risk glossing over important local differences and contribute to a de-politicization of basic inequalities in access to healthcare.

AB - Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in both Pakistan and Denmark with people who provide blood samples and health data for the same laboratory, we find that when participants discuss trust they are trying to shape their relationship to researchers while simultaneously communicating important hopes, fears and expectations. The types of trust people talk about are never unconditional, but involve awareness of uncertainties and risks. There are different things at stake for people in different contexts, and therefore it is not the same to trust researchers in Pakistan as it is in Denmark, even when participants donate to the same laboratory. We conclude that casual references to ‘trust’ in policy documents risk glossing over important local differences and contribute to a de-politicization of basic inequalities in access to healthcare.

U2 - 10.1007/s11019-017-9795-9

DO - 10.1007/s11019-017-9795-9

M3 - Journal article

C2 - 28875227

VL - 21

SP - 169

EP - 179

JO - Medicine, Healthcare and Philosophy

JF - Medicine, Healthcare and Philosophy

SN - 1386-7423

IS - 2

ER -

ID: 185902739